Having worked with children for 14 years I knew that was not the case. I had already done the research but could not afford the independent psychologist testing without the help of my ex husband or Mr. Frogman's dad. I was finally able to convince Mr. Frogmans dad that we really needed this, he finally acquiesced.
One week later I was in the office of a psychologist recommended to me by other parents. She met with my son for a few hours and then we got to go home. A week later Mr. Frogman and I went back. As he politely requested to play the computer game again while the doctor and I talked. She agreed and he was off to the computer. The psychologist and I sat and talked. She explained what tests she ran. She went over the test results and showed where he didn't show ADD or ADHD but where the spectrum ran differently into the Autistic side. She continued on. All I could think of was, my son was autistic. What did that mean? What do I do? Who do I go to for help? What can I do for him? How will this change our life?
After some tears, and trying to explain to his dad who would not accept there was anything wrong and told me that I could handle this. I thought to myself of all times to really be a single parent. Who do you talk to? Who can you rely on? Who is going to support you through this emotionally? Where do you turn? What do I do now? It took me 24 hours to turn this thought process around. Within the next week I had done so much research on autism and the spectrum. Treatments and procedures, possible causes, attempted cures. I know I didn't get all the information. I did get enough how ever to know what I did or didn't want to do. I was not going to medicate my child or put him through many unneeded tests if there was no "cure" to autism. This is something we were going to live with and do what we could to make life the best for us.
Having ended a marriage where my husband made most of the decisions I was on my feet in full motion at this point. Was I going to fight or flight on this one. Of course being the mom I only wanted what was best for Mr. Frogman that was and is still the only thing that matters. If you met him on the street you would not know he was autistic he is high functioning. But if you meet with him one on one or in social or large group settings you will notice a big change. If you change the rules, not follow a schedule or routine thats when you will notice a huge difference in him, his attitude, behavior and attention span. He becomes quite different.
It was time for me to stop being teh behind the scenes mom to the parent at the forefront of the offensive lines. It took me about 20 minutes into the firt meeting to realize that I had to take charge. The first few school meetings were not good ones. Everyone kept treating me as though I didn't know what was going on. Below are the accounts of what happened in the third meting where for me at that time a light bulb came on and enough for me was enough. It goes like this:
All names have been changed so as not to jeopardize anyones position.
SCHOOL
Have you ever had a time when someone gets between you and your child or your way of doing things? Usually it is a government office or the school district in my case they are almost one in the same. In the past year my son was diagnosed with Asperger’s Syndrome, which is a form of Autism. In order to best suit his needs I met with the school to see what programs were available to him. Over the course of his life as we went through I made sure to engage him in activities to keep him calm and kept him on a routine which I found he took to very well. As with any school system they recommend programs that they feel will best suit the child’s needs. The school psychologist and I since I was in high school (as he was my high school psychologist too) never got along. He always thought, in my opinion, that I may have needed help. With my brother having set the standard by being as active and outgoing and crazy acting as he could be, it gave me a lot to have to correct and live up to. He was a tough act to follow.
Going into the meeting not only had the school psychologist not had in front of him my sons diagnosis of which I had provided for them a few months prior so that I could get my son the help he needed through the district, he did not keep current on everything that was going on. When I walked into this meeting I felt like it was me against everyone. His first grade teacher was pushing for putting him on some sort of medication. The nurse wanted me to check out various other activities that could possibly help. Everyone had their own opinion of what they wanted for my son and they felt that what they wanted was what was best for him. I did not agree.
As his father and I agreed when we separated that I would take on the task of making sure I provided for his education and well being as far as what he needed with his diagnosis and if I needed anything to just ask. As his father he would step in and help provide for his son as necessary.
I went into this meeting and felt as though I was up against the world. But felt that I had all the power as this was my child and who to best make the decisions for him but me. I kept that in the forefront of my mind as this meeting started. The nine people around the table wanted what was best for my son and felt that what they wanted was right. I listened as each person who was involved with my son in some way or another at school gave their input. Then the school psychologist looked at me and asked me to sign some forms. I was looking at them and I looked up and asked what these were. As I had started to read he explained that they were the classes they wanted to place my son in over the next year. I looked them over then asked what kind of schedule this was going to create for him, as my son thrived on a set routine and schedule. It was set up something like this: Every Monday he would attend a friendship group from
For a child who needed a set routine I was confused. How was he to have a set routine with this kind of schedule and be part of his regular class at the same time? Just reading over it had my mind going in circles.
The school psychologist handed me a pen and said if you will just sign right here Mrs. Murphy we can get things set up. I took the pen and looked at the sheet sitting in front of me. My mind was running and he wasn’t scoring any points with my trying to rush me into signing the forms. I was taking my time purposely when the psychologist pointed out the locations to sign which were plainly obvious. I’m sure he was thinking, “Boy is she slow.” When I looked up and put the pen down. He gave me a very curious look. I then looked at him and around the table and asked how much money is my sons’ diagnosis was bringing in to this school? They looked at me somewhat stunned. What they didn’t know is I had done my research on the district and what funds were available to them by the state and other sources for children with disabilities. The more I thought about all they were trying to have my son do the more I was thinking they were looking at the dollar signs.
The psychologist hadn’t realized I was getting angry with what they were hurriedly trying to push thinking I didn’t know any better. I asked many questions and had done extensive research finding I had already done a lot of the things necessary for my son to deal with his disability. I had him involved in activities that had clearly defined rules and boundaries. I had him involved in social groups that kept him interacting with other children his age. I had it set in my mind what would be best for him and what I felt he needed. As I started to say something I was immediately interrupted by the psychologist who again stated, “Mrs. Murphy, we have designed a plan that we feel will most appropriately meet your sons needs. If you will just sign here…” At that point I interrupted him. I asked him how much one on one time he has had to spend with my child. He responded with, “I have spent about 2 hours a week with your child over the past month working with him on skills to see what level he is at.” I just nodded and became even more frustrated but didn’t say anything else as of yet. The meeting was going on longer than they had anticipated and I hadn’t signed the forms yet. I looked up at him and stated because he had spent 8-10 hours over the course of a month with my child that told him he knew what was best? “Mrs. Murphy, I do have a Masters Degree in Child Psychology so I would think I would know what I am talking about.” It was the wrong thing to say to an already frustrated person. I’m sure by this point they could see the frustration on my face. So I looked at him and said, “And I don’t know what I am talking about? I have spent the last 8 years with my child. I know likes, dislikes, things that set him off and keep him calm, the age group he prefers to socialize in. I can read his feelings and keep him on an even keel with a positive attitude and allowing him hands on learning. Do you think I do not know what is best for him?”
At this point the principal who was sitting quietly at the end of the table sat up and was listening intently to the conversation. I believe he sensed my frustration and could see I was reaching my boiling point. The psychologist went on about what was best for my child and how with his Masters Degree gave him the knowledge to know how to work with and what was in the best interests of children. As he was going on I was becoming angry. I had just been insulted. I interpreted what he was saying was I was a mom without a degree in psychology that it meant I didn’t know anything nor did I know what was best for my child. While the psychologist was talking the principal called out his name lightly, then again a second time a little more loudly. When the psychologist looked at him he stated that I think we need to give Ms. Mohar some time to think about the decision she is about to make for her son. The psychologist looked at me again and stated, “Mrs. Murphy, do you need any of these things explained to you?” I looked up at him and met his gaze. In a very calm voice I said to him with teeth clenched, “Number one, there is only one person in this room who has gotten my name correct. If you were aware of what you are doing you would have realized along time ago that my name is no longer Murphy. If you look at all the contact paperwork in front of you, you will see that the last name is Mohar. Number two, I have understood and interpreted every word you have said very clearly you do not have to treat me as though I am a child. He then went on and stated that if I knew what was best for my child I would sign the form. I at that point stood up as did the principal and he went to say something and I looked at him and said I will say what I have to say first. I took the form he had given me and torn it in half in front of him. No one else around the room had said a single word during this time period. I looked at him and said that I would make the decisions for my child and what I was seeing was not in my child’s best interests it looked as though it was in the schools best interests financially. The psychologist then stood up and said that he would know what was best he had a Masters Degree in Psychology. I looked directly at him and stated that I may not have a Masters Degree in Psychology but I do a document that would supercede his Masters Degree, I have a birth certificate with mine and my sons name on it and until his name was on that certificate, which would only happen over my dead body, I would be the one responsible for making the decisions that were in my child’s best interests. I stated exactly what classes I wanted my son in and after looking at the schedule his teacher had provided and the class times they were offering I had, during all of this, put together a schedule for my son that was consistent and gave him the necessary tools that I could not give him at home. I then walked out of the meeting stating that I would call them to reschedule any meetings necessary and I would be contacting each of them individually. I would under no certain circumstances meet with the school psychologist again.
The principal followed me out of the meeting and stated that he knew there was conflict with the psychologist and I from the beginning. I looked at him and stated again when it comes to the well being of my child I am not one to be reckoned with. He laughed and very quietly stated that he had been waiting for someone to knock him down a bit he was too big for his britches. But most parents feel because he is educated they can’t argue with him. I told him that I may not have a degree but again I do have a birth certificate and that far outweighs his degree. I also am not stupid and to be treated as such does not fly with me. He chuckled and said apparently so. Two days later the principal invited me in to another meeting where we sat down and again went over the classes they wanted to have my son attend. I had had ample time to go over my sons daily schedule with his teacher as well as what programs were going to best work with the Occupational Therapy Teacher as well as the Special Education Teacher, Reading Specialist and Nurse with time to go over what I could do at home to best work with him. We again had the same group meet to go over the classes.
The school Psychologist was again in this meeting and again attempted to try to get me to sign the form with all the classes. I looked at him and put my hand up, which immediately silenced him. He was not going to get away with running this meeting. It was my turn. I looked around the table and thanked everyone for coming. I then wrote on the form that I was too sign, the class schedule that worked best for my son. I had managed to get him into classes Monday through Friday in the same room at the same time of day but with the different instructors. Mondays he would join the friendship group for lunch and then meet with the Special Education teacher for his writing and problem solving social skills. Tuesday through Thursday he kept the same schedule with the Special Education Teacher at the same time of day to handle the transitions and go over his writing skills. Then on Fridays he would meet with the Occupational Therapist who would work on his Large and fine motor skills testing and send home a report to me so that I could work on specific activities with him over the course of the next week.
The school psychologists face turned beat red. I then looked at him to try and make the point hit home much further to him as I’m sure it already had. I said to the group that it had taken me approximately 2 hours to look over his schedules and the needs that needed to be met and a few phone calls to see if this was doable. After talking with everyone and the wonderful cooperation on behalf of all involved we managed to work out a schedule that included the teachers and me in meeting the needs of my son. Amazing how far a birth certificate will get you in life.
This is one of the many stories I have written. Many of them humorous about the simple things in our life. I found this to be one of the harder ones but Mr. Frogman is and always will be worth the fight. I know he is not as "autistic" as I was told the other day. He is autistic only high functioning although not all attributes show up at school we see alot more at home where he is more comfortable in his environment to share his feelings and some behaviours. We have alot of structure and routine. When Mr. Frogman does homework so does mom. I can't leave the homework table until he is done. He has to read for 3o minutes. Dinner always comes before reading time not after. We are pretty stuck to our routine. It is difficult to explain but I am pretty sure most of you know what I am talking about. We have our share of outbursts and tantrums, social ineptness plus much more. But I am blessed to have him just the way he is.